Being a mother is hard enough for anybody. There are endless demands for attention, for snacks, lost shoes, homework, costumes for school plays, mending, lost toys, more snacks, peace talks and a bit of accident prevention. Around the world there are many mothers who are achieving all of this while battling lupus. Lupus is a disease that inevitably affects the whole family, and while there are many resources available for adults looking for information, Isabel de Ron found that there was nothing available for children in Spain. And so she wrote Magic Wand for Sale. This book tells the story of Paula, a 9 year old whose mother has SLE and has to spend many hours in bed. Paula finds a magic wand that will grant her one wish if she manages the near impossible task of catching a delicate butterfly with special Chinese chopsticks. Paula faces up to the challenge but she can't decide what to wish for. Should she wish for her mother to get better or for the most beautiful pair of pink sparkling skates she's ever seen?
Isabel de Ron, the author, and Debora Jackel, the illustrator, live miles apart in Spain and Australia respectively. They came together with support from the inspirational mothers at the Spanish Lupus Foundation and funding from several Spanish banks to tell this story and help start a conversation about lupus amongst chilldren, particularly what lupus is and how it affects the whole family.
The book has been a great hit in Spain. It has raised the profile of lupus in the general public and granted the illness "Rare disease" status making it a priority for government funded research. "The silence is the worst thing about Lupus. No-one wants to talk about it. Silence converts us into invisible beings" Nelida Gomez Vice Chairman of the Spanish Lupus Foundation.
Magic Wand for Sale is now available in English and can be bought from
here. I'd love to tell you whether Paula catches the
butterfly and which wish she chooses but I'd hate spoil its genius ending for you! GET YOUR OWN COPY!!! Support a great cause!
It is no secret that I have a very deep and personal relationship with God. I have pushed and resisted that relationship this past year through all the bullshit I have had to go through living with Herpes but once again, God is bigger than my stubbornness and broke through that outbreak cold sore and all I had Genital Herpes. For me personally, hearing over and over how I am not good enough has really invaded my mind in the worst way possible. I completely shut down and I was just waking up like is this how life going to end this temporary herpes outbreak “fuck everybody with herpes if you know what I mean” but let's be honest here...
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